Rare conditions database

Although rare conditions are fairly common, it is very hard to find good quality information on them. Often, the content is written by patients and carers, which is fine, and always important to have the personal viewpoint, but it is important to bear in mind that there might be differences in the patient situations and that their experiences might not match yours or those of your patient. Madison's Foundation was set up by a family whose child suffers from a rare condition. They have compiled a database called M-Power Rare Pediatric Disease Database, which contains 522 diseases. Each record contains general information about the condition together with further web links and other references.

This section will be updated as more resources are identified.